Stories

Connor’s Story

Written by Heart Angel Mum Carla “Our baby Connor was born on the 7th September 2016. At the 20 week scan doctors picked up on the size of Connor’s aorta. They were airing on the side of caution but suggested it could be coarctation of t…

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Sofia-Roses Story

Sofia Rose was born healthy but at 2 months of age she went into cardiac arrest and was diagnosed with cardiomyopathy. The cause of this was unknown.

Sofia Rose’s mum Anita said she was grateful for the support her family received from…

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Hannah’s Story

Hannah was airlifted to Lady Cilento Hospital when she was seven days old, where immediate plans were made for her first open heart surgery. Hannah had her second surgery at four months old.

Hannah’s parents, Lisa and Bailey, say they …

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Ryder’s story

When Ryder was 5 days old he was having trouble breathing and was emergency air lifted to Brisbane from Cairns. Finding out Ryder had a heart condition was a huge shock to his parents.

Ryder spent the first few months of his life in the …

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Evie’s Story

Evie was diagnosed with Tetralogy of Fallot when she was 2 weeks old. Her parents’ biggest fear was that they would lose their precious daughter. They went home with a list of symptoms to watch out for that would mean rushing Evie to hosp…

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Ella’s Story

Ella was diagnosed with Tetralogy of Fallot and Double Outlet Right Ventricle (half a heart) at the 21 week utero scan. After Ella was born she went home for 3 months, but during that time she was having seizures called Cyanotic Spells. Ell…

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Jeffrey’s Story

Jeffrey Charles Jensen-Paag was born on 4 June 2013. Jeffrey’s didn’t wake up properly for his feed during his first night home from hospital. His parents Kristie and Stephen rushed him to hospital.

Jeffrey was diagnosed with Critica…

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Wilbur’s Story

Wilbur had life saving heart surgery at just 5 days old and again at 13 months old. Wilbur has a life long journey with Childhood Heart Disease (CHD).

Wilbur was born via emergency c-section when his mum Natasha developed pre-eclampsia. …

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Ella’s Story

Ella was born on 18 August 2004 with the Congenital Heart Abnormality called Truncus Arteriosus as well as VSD and ASD (hole in the heart).

Ella had her corrective open heart surgery when she was born at the Prince Charles Hospital. She …

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The Schmidt Family’s Story

25 years ago Amanda Schmidt’s dad sadly passed away at only 39 years of age while waiting on the transplant list as a result of Dilated Cardiomyopathy. Amanda and her Husband Cory, fell pregnant with their first child Max in 2008. Amanda …

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Queensland