Paul's Story

 
 
 

Once a Hearttkid, Always a HeartkidPAUL

(Adult Congenital Heart Survivors Network )

"Once a Heartkid, Always a Heartkid"

 

Name: Paul

Age: 39

Congenital Condition: VSD with Eisenmengers Syndrome

I was born in August 1967 at the Mater Mothers Hospital Brisbane, weighing 8lb 8oz. Having been a Caesarean; I kept mum and myself in the Mater for 10 days. It was discovered at 8 weeks old that I had a Cardiac Bruit during a Orthopaedic Consultation, finally flying home to Weipa 3 months later. Mum and I had our first experience with TPCH when I had my 1st Cardiac Catheters in July 1968 where it was found that I had a large Hypertensive VSD, by this time mum was expecting my sibling and my Cardiologist had now put me on Lanoxin with the plan for full corrective surgery at around 4 to 5 years old. I had my 2nd Cardiac Catheters in April 1970 it was found that my condition had now become a VSD with Eisenmengers Syndrome, the idea of surgery was now out of the equation and conservative treatment recommended. My GP who I have known for over 20 years keeps a close eye on me.

I have been told that it was hard for me to put on any significant weight for the 1st few years of my life, even though I had no problems with feeding. By the time I started primary school I was taken off Lanoxin and my yearly check ups were changed to every 2 years. I have been through two Directors of Cardiology at TPCH and now see a Cardiologist through the private system, with my reviews every 18 – 24 months. Generally overall, I haven’t had major problems.

 

Paul aged 4 months at the Prince Charles Hospital

The hardest part during my primary school years was having to sit in the hot sun all day, as I wasn’t allowed to participate in inter school sports or cross country runs; I did however get involved with sport during lunch time participating at my own level, even though I wasn’t that good at it. When I finished primary school at the end of 1979, dad moved the family back to Brisbane for me to attend high school, from year 7 I attended all of my five school camps. After leaving school at the end of year 11, I went and did an Associate Diploma. This year I started a Diploma in Business, part time. Some of the things that I have always enjoyed are boating, fishing, camping, swimming, indoor cricket and the occasional game of golf.

My sister understands and respects that I have a heart condition and doesn’t treat me any differently, she always asks how I got on after I have been for my Cardiac Reviews. Thankfully I had my Grandmother living in Brisbane during my childhood years, so my reviews were planned around our Christmas holiday trip to Brisbane. Until very recently, it has only been very good and my best childhood friend that knew I had a heart condition.

 

 

click here to see   Paul & Allana's wedding photos-