Bronwyn's Story

 
 
 

BRONWYN

(Adult Congenital Heart Survivors Network )

"Once a Heartkid, Always a Heartkid"

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Name: Bronwyn

Age: 24

Congenital Condition: Long QT Syndrome

Brief history of treatment i.e. Surgeries etc…:

I was 18 years old when I went into one of the private day surgeries located at St. Andrews Place for routine wisdom teeth removal surgery. After a successful operation, I wasn't recovering as well as expected and ended up going into cardiac arrest. Thankfully, the day theatre was located across the road from St. Andrews War Memorial Hospital and I was quickly transferred by two of the hospital's arrest teams into the Cardiac Cath Lab for emergency surgery, including having a balloon pump fitted to help keep my heart beating.  

Despite being transferred into Intensive Care, my condition still wasn't improving to the Doctors' satisfaction and they were beginning to believe the damage to my heart was irreparable. The Doctors were considering putting me on a heart lung machine and transporting me to Prince Charles Hospital for an emergency heart transplant. Luckily my heart decided to improve at the crucial moment and this plan was abandoned. I spent a total of 5 days in ICU before being transferred to Cardiac Ward 4C.  

After undergoing some tests I was diagnosed with the heart condition Hereditary Long QT Syndrome. In a nutshell, this means that in one section the electrical pulses of my heartbeat are longer that what is considered normal and I am more susceptible to arrhythmias than the average person. After the doctors diagnosed my heart problem, I underwent defibrillator implant surgery and was able to go home towards the end of my third week in hospital. 

My entire family are cardiac patients. Because Long QT is a genetic condition both my brother and mother have Long QT as well. However, they are not as severe as me and do not need a defibrillator but, all three of us are prescribed betablocker medication to help regulate our heartbeats. My father has a completely different set of heart problems; his heart rate can slow down to dangerously low rates and has a pacemaker to rectify the problem. 

Nearly six years on, I'm now facing my first defibrillator replacement surgery as my batteries are slowly starting to drain. But I've been extremely fortunate that in this time I haven't had any further problems or shocks from my defibrillator. 

Other general information you wish to share about your life, family, friends, work or social activities: Despite my heart condition, I live a relatively normal but hectic lifestyle. The close call with my heart condition gave me the motivation I needed to get out there and enjoy life to the utmost. Since my recovery I have taken up a number of different sports that I’d always been thinking of doing, but just never got around to actually starting. I now compete in a social league of Inline Rollerhockey every week and in early July I will be representing my hockey club at the State Championships. I have also taken up hip-hop dance classes, I go sailing on catamarans with my sail club every few weeks and I continue the habit ingrained from the Cardiac Rehab program I undertook after my surgery of going to gym at least two times a week. I don’t let my heart condition be a huge hindrance and very rarely will it prevent me from doing something I want to do. The only restrictions it has placed on my life is I can no longer take a number of regular medications, such as anti-histamines, cough mixtures or cold and flu tablets and having a metal device implanted in your chest means getting through airport security is a bit more challenging than for the average person. I know that there are other young defibrillator patients who don’t like having an ICD at all, but to me my defibrillator is my security blanket and I’m happy in the knowledge it’s there to look out for me and be there to set things right should my heart go haywire again. 

Other: But this isn’t something I could do on my own. If it wasn’t for the wonderful care provided by the staff from St. Andrew’s including Dr. P. Lavercombe & his team in the Intensive Care Unit, the staff from Ward 4C, Steve & Lisa from Cardiac Prevention & Rehab, and last (but by no means least) Dr. P. Hadjipetrou, Dr. W. Stafford and their teams at Queensland Cardiovascular Group, not to mention the continuing love and support from my friends and family over the past six years, I wouldn’t be here to recount this tale in the first place.