Adult HeartKids Network

“Once a HeartKid, Always a HeartKid”

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image With more and more children surviving heart disease, but having to live with the treatments, operations, uncertainty etc, HeartKids felt there was a real need to meet the needs of this group. Our first ever (that I know of) adult CHD get-together was held at the beginning of October 2006 beside the river at Toowong Rowing Club. Grown-up heatrkids Nick Frassetto, Bronwyn Bird, Jarod Moseley, Paul Higgins, Kelley O’Donohue and Michael Toon along with Michael’s mother and Heartkids Vice-Pres Lindy gathered in perfect spring weather for a BBQ and a few drinks to chat about anything and everything as well as, naturally growing up and living as an adult with heart disease. The event was a success for the small but dedicated group that kicked this group off, with special mention to Jarod who drove up from the coast for it and to Boston, Michael’s labrador puppy who provided most of the entertainment.

The lunch was very relaxed and enjoyable. It is hoped we can turn a small, friendly, diverse group into a large, friendly, diverse group that can not only provide friendship and support for each other but a significant lobby group to make positive differences in adult CHD services as well as maintaining inspiration and support for the Heartkids following in our footsteps!

So don’t be shy, if you want to join our online forums or meetings just give us a call or email:
Co-ordinator: Kelley O’Donohue
Mobile: 0413 083 815
Email: (JavaScript must be enabled to view this email address)

  • Heartkids Qld forum
    A place to come and chat to other people with ACHD and share your experiences

Read a few of our stories at Grown up Congenital Heart Stories

This group aims to meet regularly, perhaps bi-monthly (every two months) at a hotel on a Sunday for drinks to maintain friendships and form new ones. If you are interested in being on the e-mailing list for notification of events and news for this population send you details through to heartkids.

Great sites for additional support and information: