The Good Guys

The Good Guys Brisbane Metro, Kawana Waters and Robina

The HeartKids Qld partnership with The Good Guys Brisbane Metro, Kawana Waters and Robina has the ability to raise the Awareness of HeartKids within the community as well as raising much needed funds for our charity.

The Good Guys are assisting us in employing our lovely Family Support Coordinator Silvia at the Mater Children’s hospital, buy much needed equipment for the children’s cardiac ward and hold a great Christmas party for HeartKids and their families.

How does this partnership work? Please shop at The Good Guys stores listed below and every purchase you make will have 20c from each docket donated to HeartKids Qld and other nominated Good Guys Community Partners.

You may think 20c is not much but if you add them all together it can be enormous. Since 2006 the Australian group of The Good Guys has raised $2,000,000.00 for Community Partners.

How else can we help The Good Guys raise funds for HeartKids Qld? Occasionally we will be asked to host BBQ’s at The Good Guys stores on VIP nights. We simply turn up and cook the BBQ and sell the sausages, everything is supplied by the store.

How will I know when these nights’s are on? We will send out a group email to your area in advance of these evenings, please consider helping out for an hour or two. You will be with other HeartKid families and supporters and we’ll have a great night.

But I haven’t given HeartKids my email address? Please go to the “Membership” tab under “How to Help” and complete your details, membership is free. You can then scan and email your membership back to (JavaScript must be enabled to view this email address), post it to HeartKids Qld PO Box 118 Underwood Q 4119 or fax it back to 07 3341 5460.

Ultimately The Good Guys are helping our organisation so if you do happen to be in need of a new TV, washing machine or hairdryer please consider shopping at The Good Guys. While your there tell your salesperson your from HeartKids and thank them for their help. In the end were all in this together to make HeartKids great.

Which The Good Guys Stores are supporting HeartKids Qld?
Capalaba – James Brockhurst
Mt Gravatt – Francie Vincent
Oxley – Tate Mason
Ipswich – Mark Timms
Carseldine – Lachlan Ackers
Morayfield – Dale Roche
Loganholme – Airen Youhanna
Lutwyche –Alf Said
Browns Plains – Russ Daniels
Kawana Waters (Sunshine Coast) – Chris McCormick
Robina (Gold Coast) – Gavin Cowan

Patron Mayor Paul Pisasale

One thing I love about Queensland is the way we can display what a big heart we have in all areas – business, community and of course, sport. Who can forget this year’s historic State of Origin win!

I am proud to be the new Patron of HeartKids Queensland, and I ask you to help Queensland kids who need our support to give them a stronger heart. One in 100 babies are born in Australia with Congenital Heart Disease each year and many more acquire heart conditions during their childhood. Heart disease is the number one cause of death in Australian children under 5.

HeartKids Queensland raises funds to help support HeartKids and their families with support programs, understanding and information, as well as ensure that the best possible equipment and facilities are available for these kids’ treatment. I congratulate the Good Guys for their commitment to our HeartKids.

From July 1 as part of The Good Guys Local Giving Program all Good Guys stores in Brisbane and the Sunshine Coast will make a donation from every purchase made in store to HeartKids Qld for the next 12 months.

They hope to raise in excess of $50 000 that will go towards life saving oxygen and heart monitors for the Cardiac Ward at the Mater Children’s Hospital, increased hours for a HeartKids family support worker, development toys for the ward and a parking fund for families receiving ongoing treatment.”

Mayor Paul Pisasale

Letter from Paul-Pisasale

Fundraising Events 2010

HeartKids Qld Race Day – Sunday 14th February 2010

International Congenital Heart Disease (CHD) Day
HeartKids Qld is hosting a great day at the Sunshine Coast Turf Club, Caloundra on Sunday the 14th February 2010. Monies raised on this day will assist HeartKids Qld in purchasing much needed equipment for the Mater Children’s Hospital. Please come along and join us in the Favourites Function Room for a lovely buffet luncheon for $66 per person with a glass of champagne on arrival. Or take advantage of the free tickets (valued at $10 each) for general admission.
HeartKids Qld Inaugural Race Day flyer
Please read……Dress standards do apply for the day, please note the following

Privacy Policy PDF

Privacy_Policy.pdf

Heritage Building Society

Click on the above logo to go to the Heritage Building Society’s webpage.

HeartKids Qld Inc have entered into a new and exciting partnership with Heritage Building Society. This year HeartKids Qld will benefit from the money raised through the sale of the 2009 Heritage Building Society Calendar. This calendar is part of a 28 year Calendar House Series and is available in Heritage Building Society branches for a gold coin donation. Please visit your local Branch to pick up a calendar today.

HeartKids QLD Inc is also pleased to announce an alliance partnership with Heritage Building Society. By moving your banking to Heritage and quoting that you’re a member of HeartKids Qld. HeartKids QLD receives much-needed funds to assist with their growth and you will receive great discounted rates on Heritage products. This means that you can raise money for HeartKids QLD simply by taking advantage of Heritage’s great offers.

Happy Banking with Heritage and please support an organisation that supports us.

Regards,

HeartKids Qld Inc.
Board of Management

With All Our Hearts Calendar 2009

HeartKids Qld 2009 Calendar

Well it is finally here the 2009 HeartKids Calendar has arrived and is on sale for $11 each including postage.

For orders please complete the attached form and post to: HeartKids Qld Inc
PO Box 118
UNDERWOOD QLD 4119

OR Fax with your Credit Card details to:
07 3341 5460

Calendar Order Form
Credit Card Form 2009 Calendar

Fundraising

Information

Heart Conditions – Detailed new online site for parents.

HeartKids is pleased to offer this new online resource for people wishing to know more about various heart conditions. The site includes details on tests, procedures and operations along with details on health and nutrition, exercise, schooling and adult congenital heart issues.
Heart Conditions – detailed information for parents

Children with Heart Conditions

A great online book for parents of children with a heart condition

Children with Heart Conditions – online booklet

Information Sheets

The forms below may assist you when your child starts childcare, preschool or school.

Double click to view or Right click to download to save

Parent__School_Information_Booklet

First Aid Action Plan

Medical History Form

Information for Teachers and Carers

Research Articles

Paediatric Cardiology at Monash Heart

Kidz4Heartkidz

Kidz4HeartKidz is a support group for HeartKids and their siblings within HeartKids Qld Inc.
Our slogan is “Kidz Empowering HeartKidz”.

We would like to organise gatherings and excursions with HeartKidz and their siblings and create a place with friends that understand what you are going through.

If you would like to join us in some fun activites please have Mum or Dad email to the link listed below.

To join, please have Mum or Dad complete the Kidz4HeartKidz Membership Form and send to:
Kidz4Heartkidz Membership Form
Kidz4Heartkidz
P.O. Box 118
Underwood. Qld 4119

Email: (JavaScript must be enabled to view this email address)
Make sure you check the website each quarter for the Heartkids Newsletter for what’s happening with Kidz4Heartkidz and make sure you let us know what you need.

Kidz4HeartKidz Photo Album

Fun Fairies, left to right Paige, Taylor and Mel

December 06, 3 teenagers with remarkable similarities met for the first time at the Prince Charles Hospital.

Paul hails from Moranbah (central QLD), Yannis from Mossman (FNQ) and Alex from Grafton (NSW). All were born with Tetralogy of Fallot, repairs when they were babies.

Paul, and Alex had their repairs at the Prince Charles Hospital, while Yannis had his surgery in the UK.

The 3 budding sportsmen – Paul (rugby league), Yannis (surf life saving) and Alex (hockey), all received donor pulmonary valve replacements in this round of surgery.

Yannis had a total of 24 days in hospital, Paul 11 days and Alex was out in 8.

Adult HeartKids Network

“Once a HeartKid, Always a HeartKid”

With more and more children surviving heart disease, but having to live with the treatments, operations, uncertainty etc, HeartKids felt there was a real need to meet the needs of this group. Our first ever (that I know of) adult CHD get-together was held at the beginning of October 2006 beside the river at Toowong Rowing Club. Grown-up heatrkids Nick Frassetto, Bronwyn Bird, Jarod Moseley, Paul Higgins, Kelley O’Donohue and Michael Toon along with Michael’s mother and Heartkids Vice-Pres Lindy gathered in perfect spring weather for a BBQ and a few drinks to chat about anything and everything as well as, naturally growing up and living as an adult with heart disease. The event was a success for the small but dedicated group that kicked this group off, with special mention to Jarod who drove up from the coast for it and to Boston, Michael’s labrador puppy who provided most of the entertainment.
The lunch was very relaxed and enjoyable. It is hoped we can turn a small, friendly, diverse group into a large, friendly, diverse group that can not only provide friendship and support for each other but a significant lobby group to make positive differences in adult CHD services as well as maintaining inspiration and support for the Heartkids following in our footsteps!

So don’t be shy, if you want to join our online forums or meetings just give us a call or email:
Co-ordinator: Kelley O’Donohue
Mobile: 0413 083 815
Email: (JavaScript must be enabled to view this email address)

Heartkids Qld forum
A place to come and chat to other people with ACHD and share your experiences

Read a few of our stories at Grown up Congenital Heart Stories

This group aims to meet regularly, perhaps bi-monthly (every two months) at a hotel on a Sunday for drinks to maintain friendships and form new ones. If you are interested in being on the e-mailing list for notification of events and news for this population send you details through to heartkids.

Great sites for additional support and information:

ACHC New Zealand

How to become a Partner/Sponsor

As a Charity with both State and National offices we welcome partners/sponsors at both levels.

HeartKids Queensland recognises National Foundation Partners as well as Platinum, Gold, Silver and Bronze State Partners

Campaign and Event Sponsorship

Through out the year HeartKids holds various campaigns including Cuppa for Kids, Gala Balls and other fundraising events. These can be sponsored on either a state or national level.

Equipment or Research Sponsor

With HeartKids making up the majority of admissions into Intensive Care Units around the country, there is always a need for new equipment. At HearKids we can direct your sponsorship dollars directly to the area you would like to contribute. This can range from beds to tv’s to cardiac monitoring equipment. OR if you prefer we can channel your donations specifically into research.

Create your own event at work or your parent’s group.

There are a number of ways you can raise funds independantly for HeartKids, each state offers their own unique angle on what’s fun to do, or you can simply make up your own.

General Membership

HeartKids membership is State based and is open to individuals and families as follows:

Persons with congenital or childhood heart disease

Parents or guardians of a child with pediatric heart disease

Click on the link below to download the form.

HKQ Membership Form “New”

Thank you for considering becoming members of HeartKids Qld. During the April 2009 AGM the HeartKids Board voted to abolish the membership fee associated with our organisation. Membership is now free! Please complete the attached membership application and we look forward to hearing from HeartKids families and friends.

General Membership offers you:

A seasonal Newsletter is available on the HKQ website to keep you informed and updated.
Family Support Coordinator – present in the Mater Children’s hospital to offer you support at critical times, by phone and email as required.
Regular coffee mornings so that you can meet and share experiences with other families, these are held in the Mater Children’s hospital every Tuesday and Thursday morning. We also encourage you within your local area to host regular coffee mornings this helps to develop a local network of support for you and your families.
Opportunities for your heart child to attend events with other heart children

Opportunities to attend special afternoon or evening information events by invited medical practitioners and other professionals as they arise.

Membership is subject to approval in accordance with the rules of HeartKids Queensland

Volunteers

HeartKids Queensland offers a wealth of opportunities to become involved as a volunteer – fundraising activities, supporting one of our functions, providing secretarial and office work to help our small team, or even supervising kids at Teens Camp… whether you spend hours a week, or an hour a year or as a ‘one off’, all of it is appreciated.

Queensland provides support, advocacy, equipment and research for kids with heart disease and their families, but it is volunteers like you who make it possible.

Together, we can make a real difference. Call HeartKids Queensland on (07) 3341 8145 .and learn more about how you can help and don’t forget to tell others about us and help spread the awareness that will ensure better outcomes for all HeartKids.

Gold Partner Logos

home page text

Our aim is to provide useful information and avenues of support for families of heart children.
Please browse the site for information on:

Our support services.
A list of our partners and supporters.
Upcoming events and regional news.
Our contact details and membership details and,

Your Stories generously shared by the families affected by CHD.

Thank you for getting in contact with us

Enquiry Pack

Disclaimer

Please remember that the opinions expressed in any article herein represent personal experience only. MEDICAL DETAILS ARE SPECIFIC TO EACH INDIVIDUAL CASE AND MAY NOT BE APPLICABLE TO ANOTHER CHILD. Parents who require more specific information should check with their child’s own Cardiologist.

Also, please note, that the opinions expressed in the articles herein, are those of the author and do not necessarily represent the beliefs or opinions of the committee of Heartkids Nsw Inc.

Further Disclaimer:

Graphics found on this site were not created by the webmaster. They were obtained from various sources on the internet that labeled them as “freely distributable”. If you should discover images in this collection which you recognize as copyrighted, please email the (JavaScript must be enabled to view this email address) immediately so that they may be removed.

Useful and Interesting Links

Heart Conditions – detailed online site for parents.

QLD Links

Genetic Health Qld

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Australian Links

Velo-Cardio-Facial/Di George Syndrome

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Overseas Links

Adult Congenital Heart Defects

Cleveland Clinic – Adult Congenital

Childrens Congenital Heart Defects

Heart Children New Zealand Inc. [New Zealand]

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Patient Associations

National Organisations

Noonan Syndrome Support Group [US]

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Sad Links

Sadly, sometimes heart children die.

Sometimes families and friend no matter how much they might wish to, can’t be the one you need to turn to. You may not have lost your child but maybe a friend has and you want to help but can’t quite find the place to start. The following are links to sites in both Australia and overseas that have been started to help families, both parents and siblings who have lost a child.

We wish that we did not have to add these links but are very grateful that we are able.

Sids and Kids QLD is an organisation that offers grief/bereavement counselling to families who have experienced the sudden and unexpected death of a child up to six years of age; there are groups also in the Hunter and other states of Australia. This site was suggested by a member who has used it and found them to be helpful.

M.I.S.S. Foundation in the USA was started by Joanne Cacciatore after the death of her daughter. There are lost of different areas on this site and it is the place of the well known kindness project. While checking this site over I found it a little sad, informative, complex and surprising to me, very uplifting. I have ‘spoken’ with Joanne via email and found her to be a very lovely woman who was pleased to be asked to be a link on our site.

The Compassionate Friends was founded in Coventry, England, in 1969, by Rev. Simon Stephens, Assistant to the Chaplain in the Coventry and Warwickshire Hospital. Simon noticed that the intensity and duration of parental grief was much greater than that of others who lost loved ones. He brought together two couples whose children had died at the same time, hoping they might comfort one another. It worked; each parent understood the pain the others were going through, and they were able to support and help one another as no one else could do. In time, the two couples reached out to other grieving parents, and The Compassionate Friends was founded. Compassionate Friends has Australian Offices.

Further telephone contacts are:

Kids Help Line: 1800 55 1800

Lifeline: 131 114

Our Contact Details

Queensland

HeartKids QLD Inc.
Phone: 07 3341 8145
Fax: 07 3341 5460
Post: P.O. Box 118 UNDERWOOD QLD 4119
Email: (JavaScript must be enabled to view this email address)
Web: heartkidsqld.org.au

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